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Shop NowMy life was good in 2017. I was married to the perfect man, enjoyed time with family and a few close friends, fly-fished often, and had my dream job working in the world of oncology. Early November I had my annual (3D) mammogram and doctor’s visit. All was good.
Just 3 weeks after my annual exam in November 2017 I found a lump during my monthly self-check. Although I had lumps prior, this one felt different….the size of a pea and harder than the past. Knowing my parents both had survived cancer, my doctor fast-tracked me in to see her again. The next week was a blur – ultrasound, another mammogram, biopsy, followed by the call from a nurse saying those 3 words nobody ever wants to hear….”You have cancer”. That day changed my life, but little did I know the gift it was to be. They estimated my tumor to be -5 cm in diameter on December 10. I had HR+ HER2- invasive ductal carcinoma. I’m in healthcare and around oncology clinics daily – I was confident I could navigate my journey. I was wrong.
Before I start telling the rest of my story I want to say EVERY journey is different. You will have difficult days and many challenges thrown at you – these will most likely NOT be the same as mine or any other patient. I share my story to help others understand the importance of self-advocacy, patient choice and building a relationship with your doctor.
So onward:
My next step was to see a medical oncologist, who said promptly, “We will do a lumpectomy, radiation and tamoxifen”. I’m pretty sure I laughed and said “WE?? No, WE won’t be doing that”. (This should have been my sign to find a new oncologist.) I had done my research and, combined with my family history and my tendency to worry about things too much, I had already made my decision. It was MY decision to make, my oncologist’s role was to provide me with my options, which never happened.
35 days after my MRI I opted for a double mastectomy direct to implant. My tumor had grown to 2.5 cm (which I learned was not normal) and they found minimal cells in my sentinel node. My oncologist said I would not benefit from radiation or chemo, but must start tamoxifen and be on it for 7 – 10 years.
6 months on tamoxifen was enough for me – side effects were bone/joint pain, fogginess and weight gain. I did my research, removed my ovaries to throw myself into menopause and started an aromatase inhibitor. In this same surgery I had my plastic surgeon do some “tweaks” to my new breasts. Around that same time my implants were recalled due to some women developing breast implant-associated anaplastic large cell lymphoma. This is rare, but something new to watch. I had one more surgery (3 total) on my breasts since then and there are no flags as to lymphoma risk. My new medication caused osteopenia and I have now added an infusion every 6 months.
Good news is I had a breast cancer index ran on my tissue which shows I would only benefit from the aromatase inhibitor for 5 years, which will be 2023….and the countdown begins.
The day I fired my medical oncologist I sat with a dear friend during one of her chemo sessions. This sweet man came in to check on her – he was kind, thoughtful and really listened to my friend’s concerns. This was truly an “A-HA” moment for me. What was I doing with a doctor who was on her own agenda and showed zero empathy?!? I never looked back.
My advice to every new patient:
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My life was good in 2017. I was married to the perfect man, enjoyed time with family and a few close friends, fly-fished often, and had my dream job working in the world of oncology. Early November I had my annual (3D) mammogram and doctor’s visit. All was good.
Just 3 weeks after my annual exam in November 2017 I found a lump during my monthly self-check. Although I had lumps prior, this one felt different….the size of a pea and harder than the past. Knowing my parents both had survived cancer, my doctor fast-tracked me in to see her again. The next week was a blur – ultrasound, another mammogram, biopsy, followed by the call from a nurse saying those 3 words nobody ever wants to hear….”You have cancer”. That day changed my life, but little did I know the gift it was to be. They estimated my tumor to be -5 cm in diameter on December 10. I had HR+ HER2- invasive ductal carcinoma. I’m in healthcare and around oncology clinics daily – I was confident I could navigate my journey. I was wrong.
Before I start telling the rest of my story I want to say EVERY journey is different. You will have difficult days and many challenges thrown at you – these will most likely NOT be the same as mine or any other patient. I share my story to help others understand the importance of self-advocacy, patient choice and building a relationship with your doctor.
So onward:
My next step was to see a medical oncologist, who said promptly, “We will do a lumpectomy, radiation and tamoxifen”. I’m pretty sure I laughed and said “WE?? No, WE won’t be doing that”. (This should have been my sign to find a new oncologist.) I had done my research and, combined with my family history and my tendency to worry about things too much, I had already made my decision. It was MY decision to make, my oncologist’s role was to provide me with my options, which never happened.
35 days after my MRI I opted for a double mastectomy direct to implant. My tumor had grown to 2.5 cm (which I learned was not normal) and they found minimal cells in my sentinel node. My oncologist said I would not benefit from radiation or chemo, but must start tamoxifen and be on it for 7 – 10 years.
6 months on tamoxifen was enough for me – side effects were bone/joint pain, fogginess and weight gain. I did my research, removed my ovaries to throw myself into menopause and started an aromatase inhibitor. In this same surgery I had my plastic surgeon do some “tweaks” to my new breasts. Around that same time my implants were recalled due to some women developing breast implant-associated anaplastic large cell lymphoma. This is rare, but something new to watch. I had one more surgery (3 total) on my breasts since then and there are no flags as to lymphoma risk. My new medication caused osteopenia and I have now added an infusion every 6 months.
Good news is I had a breast cancer index ran on my tissue which shows I would only benefit from the aromatase inhibitor for 5 years, which will be 2023….and the countdown begins.
The day I fired my medical oncologist I sat with a dear friend during one of her chemo sessions. This sweet man came in to check on her – he was kind, thoughtful and really listened to my friend’s concerns. This was truly an “A-HA” moment for me. What was I doing with a doctor who was on her own agenda and showed zero empathy?!? I never looked back.
My advice to every new patient:
Your support allows the American Cancer Society to continue:
Fighting breast cancer in city halls, statehouses, and Congress by elevating the patient voice to advance policy change through the American Cancer Society Cancer Action Network (ACS CAN)
Ensuring no one feels alone at any point on their breast cancer journey, from prevention to survivorship, and, for some, the end of life.
Investing in breakthrough science to find more - and better - treatments, uncover factors that may cause breast cancer, and improve patients' quality of life.
Ensuring that all people have a fair and just opportunity to prevent, find, treat, and survive breast cancer. ACS and ACS CAN believe all people should have a fair and just opportunity to live a longer, healthier life free from cancer regardless of how much money they make, the color of their skin, their sexual orientation, gender identity, their disability status, or where they live.
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Need an event shirt or looking for other ways to bring more pink into your wardrobe?
Check out our online store today. Proceeds from every purchase will benefit the American Cancer Society and the fight against breast cancer.
Shop NowThis isn’t what I wanted.
Welcome to our Team Page. We've formed a team because this cause is important to us. We want to help. And walking and raising money in our local American Cancer Society Making Strides Against Breast Cancer event is the best way we can do that. We all have different reasons for participating but we share a determination to help save lives from breast cancer.
There are so many ways that the money our team raises helps. It’s helping fund innovative research. It's providing free information for people dealing with the disease. It’s providing rides to treatment and places to stay for people who have to seek treatment far from home. In short, our money is helping save lives. Consider donating to our team and helping advance the cause.
How We Support the American Cancer Society
Of course we walk in the Making Strides Against Breast Cancer event. And we solicit donations from family, friends, and other supporters. But we also schedule fundraisers in lead-up to the big event. Bake-sales, car washes, and countless other types of events. And we promote those on social media, through Facebook and Twitter, by word of mouth, and through flyers at work and around the neighborhood. The success of fundraising events depends on two things - hard work and getting the word out. And we're out to do both. Keep an eye out for our fundraising events.
Join us. Donate today. Or walk with us.